Portal de Cehegin
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The Councilor for Social Services and Health, Antonia Fernandez, reported that, today, the World Day of Rare Diseases is celebrated, a day that serves, above all, as explained to "make visible the Live from people who suffer from these rare diseases and who struggle against the multiple obstacles that this condition puts in their daily work, as well as their effort to investigate from the administrations.
La Edil also recalled the commendable work done in this regard by the Association of Genes, which celebrates a year with a local headquarters in the municipality of Cehegín, which is its coordinator Pascual Donate, and on February 24 , Celebrated a day in the House of Culture of this locality in which there were several presentations of professionals who participate with this group in the region, in the field of speech therapy, physiotherapy or occupational therapy;
As well as several testimonies of people affected by rare diseases.
A few acts and a day, as the last mayor pointed out that aims to "raise awareness about rare diseases, a reality that until a few years ago was unknown to most, and that little by little comes to light thanks to this Associate with the sole purpose of being able to help and reach out to all those people who have been diagnosed with any of the more than 7,000 pathologies that exist "
Source: Ayuntamiento de Cehegín
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